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Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Aug 25, 2021

My guest this week is Taraneh, sharing her story about having a son with cleft palate.  

In this episode, we talk about…

[2:24] Taraneh’s background and her family

[3:54] Taraneh’s pregnancy and birth experience with her son

[5:23] Cleft palate and Pierre Robin Sequence diagnoses

[12:35] Flexibility with feeding a baby with a cleft palate

[15:40] Leaving the hospital and transferring care to a clinic

[20:44] Taraneh’s son’s surgery

[29:28] Surprising or unexpected moments from going through this experience

[31:39] How Taraneh’s son is doing now

[34:22] Shifting priorities in the face of a child’s medical issues

[36:08] What Taraneh wishes she had known before being thrown into the “medical world”

[41:09] Piper and Enza: providing resources to support kids and families with medical issues


Piper and Enza:

Have you heard?  The Child Life On Call mobile app for parents, kids and their care team will be available in 2022.  Sign up to stay informed here.

Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges.  We are so glad you are here.