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Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Oct 27, 2021

The Dad’s Perspective: A Son with a Rare Genetic Disease

 

So there is this rock star in the podcast world, and her name is Effie Parks.  She hosts a podcast called Once Upon a Gene, inspired by her son who has a rare genetic disease.  Effie really focuses on the idea that disability is diversity, and that is an idea...


Oct 20, 2021

For today’s 12 minute talk, I’m talking about the COVID-19 vaccine and how to discuss it with kids.  I’m going to give you some ideas, with the caveat that you don’t have to use the exact words I use.  You know your child best.

This is also not meant to be an episode that tells you to get your child vaccinated....


Oct 13, 2021

Today I’m introducing you to Jenny Hull, a single mom to Josie who just turned 20 years old.  Jenny is also the CEO and founder of a nonprofit organization called Once Upon a Room.  They are changing the game for kids in hospitals, and we’ll get into all the amazing things they do toward the end of our...


Oct 6, 2021

For today’s 12 minute talk, I’m interviewing Dr. Brittany Ferri.  She is an occupational therapist, and she has a passion for talking with kids about disabilities.  Brittany talks about her program, Social Fly, a social and motor skills curriculum that educates kids ages 5-12 about disabilities.  This program is...